During the summer of 2025 I noticed a large lump in my right thigh. My doctors thought it was likely a benign lipoma, but a MRI and biopsy showed it to be Pleomorphic Liposarcoma, a very rare form of soft tissue cancer. 

I underwent 15 radiation therapy treatments and surgery to remove my tumor. My post-operative pathology report showed that my margins were clear and that radiation killed >99% of cancer cells. I have decided not to do chemotherapy as the cardiac toxicity risks of chemo outweigh the limited benefits of the treatment. I will now have MRIs and CT scans quarterly to monitor for any future tumor growth.

One of the things I have learned is that more research is needed, particularly for rare cancers. My doctors had recommended a new immunotherapy treatment for me, but it was not FDA approved so my health insurance company wouldn’t approve it. It will take private grant funding to ensure funding for rare cancer research.

I have decided to participate in the Race to Cure Sarcoma, sponsored by the Sarcoma Foundation of America. However, there is no Race to Cure Sarcoma in Seattle, so I’m participating in the virtual event on July 18, 2026. Please join me by walking with me, joining my team and fundraising for the effort, and/or donating to my efforts. Most likely my walk will be on the Edmonds waterfront, but you will also be able to walk wherever is convenient for you. Below is generic text about the event.

Thanks to the Race to Cure Sarcoma events, SFA has funded over 200 grants in 12 countries leading to close to 200 total publications, adding to the sarcoma research discourse. This has led to $26 million+ in additional funding, 10+ clinical trials with 5 additional pending, and 2 patents. Your investment in the RTCS events, is an investment in saving lives.

Thank You!