Back in May, our world changed when Enzo was diagnosed with FOXP1 syndrome.
FOXP1 syndrome is a rare genetic condition, with only about 200 known individuals diagnosed in the United States. Because it is so rare, research is still very limited, which is why fundraising events like the FOXP1 5K are so important. Every registration and donation helps fund research, raise awareness, and bring us one step closer to better understanding FOXP1 syndrome and improving the future for families like ours.
We would love for our friends and family to join Team Enzosfoxworld by participating in the FOXP1 5K on Saturday, September 26th.
Whether you choose to walk, run, or simply cheer from the sidelines, your support means the world to us.
One thing we know for certain is that this diagnosis does not define Enzo, and it certainly won't stop him. He continues to amaze us every single day!