Note: T-shirt sales will become available on March 26th. Stay tuned for the link to purchase your shirts. The link will be shared via email and social media.
On May 16-17, 2026, the CACNA1A Foundation and families around the globe will be participating in the 6th Annual Virtual CACNA1A 5K Run, Walk, and Roll!
Participate from Anywhere!
Run, walk, roll, treadmill, swim, or pick another activity — the choice is yours! Enjoy the flexibility to complete this event at your own pace and in the way that suits you best.
Connect with Your Community!
We encourage everyone to gather with friends, family, and supporters at their favorite local spot: a park, neighborhood, school, or any place that feels special to you. Let's celebrate this event together!
Celebrating 6 Years Serving Our Families! The CACNA1A Foundation was established 6 years ago by parents of children affected by the debilitating impacts of CACNA1A-related disorders. The disorders cause a range of symptoms, including developmental delays, intellectual disability, behavioral issues, seizures, epilepsy, movement disorders, autism, hemiplegic migraines (stroke-like events), and speech difficulties, all of which significantly reduce quality of life. As the only patient advocacy group dedicated to finding specific treatments for this community, our work focuses on 3 core pillars: supporting families, raising awareness, and advancing research toward a cure.
Your generous participation in our 6th Annual 5K will directly contribute to this year's goal of raising $150,000 to identify and test medications that can alleviate symptoms and enhance the quality of life for our community. Each dollar raised brings those impacted one step closer to a brighter future.
It’s time to gather your friends and family to celebrate and raise awareness for CACNA1A! Register as an individual or create a team to support the CACNA1A Foundation.
Support existing teams by joining as a member and helping them fundraise to reach their goal. Every dollar raised directly funds vital research for CACNA1A-related disorders.
Find an In-Person Event Near You
(Locations will continue to be updated as teams are built.)
Email events@cacna1a.org to add your in-person event to the CACNA1A 5K Race Locations map!
Prizes
Embrace the Challenge. Show Your Support. Win a Prize!
All CACNA1A 5K participants are invited to join a friendly competition. Winners in the following categories will receive a $100 gift card:
Philanthropy Award: team that raises most money
Spirit Award: team with most participants
Miles of Smiles: Email a photo of your smiling Champion during the 5K, along with their name, to events@cacna1a.org and they will be entered in a drawing for a prize.
These contests run through Friday, May 29, 2026, giving a week after the event to follow-up on lingering donations and submit photos.
Will you or your team be gathering with others to participate in the CACNA1A 5K? Make it even more fun and spread more awareness by downloading and printing the CACNA1A Foundation's 5K yard signs and banner to display at your event location, home, neighborhood and even around town!
Access the CACNA1A 5K Event Toolkit for guidance and tips on planning your own local race. By participating with others, you help raise awareness for CACNA1A-related disorders, engage and grow your community and help us reach our fundraising goal, which will aide our mission to accelerate life-changing research!
Top Fundraisers
Top Individuals (17)
View AllShira Johnson
$40.00 raised of $1,000.00
Sahana Desai
$20.00 raised of $1,000.00
Sendhil Desai
$20.00 raised of $1,000.00
Sunitha Malepati
$20.00 raised of $1,000.00
Léo PICARD
$20.00 raised of $1,000.00
Top Teams (6)
View AllTeam DACH - Drei Länder, ein Ziel
$160.00 raised of $2,000.00
Pink Glasses
$60.00 raised of $5,000.00
RééducAction pour Léo , Combattre CACNA1A
$60.00 raised of $1,000.00
The Fast Trackers
$40.00 raised of $500.00
Walk for Peanut 2026
$20.00 raised of $300.00
Support this campaign!
Donate NowAny questions? Contact us today!
If you have any questions about this race, click the button below.